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A Caregiver's Guide to Lewy Body Dementia

by Helen Whitworth, MS, BSN and Jim Whitworth, LBDA co-founder

Why You Need This Book:

Lewy body dementia is the second most common dementia, after Alzheimer's and yet it is often unrecognized.

If you have a loved one with Lewy Body Dementia--or know someone who is at risk for LBD--

  • You need to know about its special issues--some that even the medical community often is not aware of.
  • And then, because the medical community is only now beginning to learn about LBD, you need to be an advocate for your loved one's best treatment and care.
The Caregiver's Guide can give you the information you need to be a good advocate.

If you work in a care facility that serves dementia patients--

  • You need training about Lewy Body Dementia--even if there are no patients diagnosed with LBD in your facility. (Patients can have more than one kind of dementia and be diagnosed only with Alzheimer's.)
  • Tell your supervisor about the Lewy Body Dementia Trainer's Kit. It gives you the information and materials you need to provide your facility with staff training and family programs. There's a textbook as well.

Family Program--This hour long presentation is appropriate for families, support groups and the general public. Showing it at an Open House is a great way to draw the public into your facility and to demonstrate that you are up-to-date on this "cutting edge" disorder.

Lewy body disorders include--

  • Dementia with Lewy bodies (DLB) starts with dementia
  • Parkinson's disease (PD) starts with motor problems and may go on to become
  • Parkinson's disease with dementia (PDD)
  • Lewy body dementia (LBD) is an umbrella term for both DLB and PDD.

Lewy body disorders include some or all of the following--

  • Dementia
  • Emotional disturbances and imbalances
  • Autonomic dysfunctions like:
    • heat regulation
    • Low blood pressure on rising
    • swallowing problems
    • gatrointestinal and urinary problems
  • Perceptional dysfunctions like
    • hallucinations
    • illusions and
    • delusions
  • Sleep disorders like REM sleep behavior disorder (Active dreams)
  • Motor symptoms like
    • tremors
    • other symptoms related to PD

Training Kit

Caregiver's Book

Live Presentations

The Whitworths

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