Program Developers, Presenters and Authors
Caregiver and Surviving LBD Spouse
Co-founder of the Lewy Body Dementia Association (LBDA)
Regularly monitors caregiver and professional sites
"My first wife died with Lewy body dementia at a time when
few people, including the medical community, knew much about
it. I tried to tell the doctors about symptoms that didn't match
Alzheimers and DID match what I'd researched about LBD but they
said, 'Never heard of it!' and ignored me. Since her death in
early 2003, I have made it my mission to increase awareness
of LBD, both in the general public and in the medical community."
Helen Buell Whitworth, MS, BSN
Retired nurse, educator,
public speaker and writer
2007 LBDA Volunteer of the Year
Former Parkinson's caregiver
"We make a great team, with Jim's experience and ongoing
LBD research and my psycholgoy, nursing, training and writing background.
I love to teach and have great fun doing this training with
Jim. When trainers have fun, the students learn! And now we
are puting my writing skills to work, making information about
LBD available to more people. My goal is for the non-medical
person to be able to undestand what we teach and write--and
for medical professionals to learn at the same time. There
is a great need for LBD knowledge in both of these groups.
The Whitworths live in Mesa,
AZ and travel in the summer to Washington where they have
family. They are willing to present their program in the Phoenix
area and anywhere along their travel route.
Although Helen has a medical background, neither
she nor Jim speak with medical authority. Rather, they both
bring you a well-informed caregiver's point of view.