Tools for Caregivers

 Reference Material Related to the Disorders and Dementia's:

This reference library will provide you with a wealth of information and tools. Each link will take you to the originating source for the information referenced in our books and throughout this website.

Please note: Over time, links may get broken or the referenced page or file may be removed from the web. Please feel free to report any broken links to us.

1.    Miyamoto T, et al. (2011) Idiopathic-REM-Sleep-Behavior-Disorder:-Implications-for-the-Pathogenesis-of-Lewy-Body-Diseases. Parkinsons Dis. 2011; 2011: 941268.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3096138/.

2.    National Institute of Neurological Disorders and Stroke. (2012) Multiple System Atrophy Fact Sheet.http://www.ninds.nih.gov/disorders/msa/detail_msa.htm

3.    Vya U and Franco R. (2012) REM Behavior Disorder (RBD) as an Early Marker for Development of Neurodegenerative Diseases. BJMP 2012;5(1):a506.http://www.bjmp.org/content/rem-behavior-disorder-rbd-early-marker-development-neurodegenerative-diseases

4.    NHS Choices. (2011) Corticobasal degeneration. NHS, Health A-Z. Last reviewed 2/12/11.http://www.nhs.uk/Conditions/Corticobasal-degeneration/Pages/Introduction.aspx

5.    NIH Publication No. 11-3897. (2011) Progressive Supranuclear Palsy Fact Sheet, NINDS, May 2011.http://www.ninds.nih.gov/disorders/psp/detail_psp.htm#184703281

6.    Walitza S, et. al. (2007) Association of Parkinson's disease with symptoms of attention deficit hyperactivity disorder in childhood. J Neural Transm Suppl. 2007;(72):311-5.http://www.ncbi.nlm.nih.gov/pubmed/17982908

7.    Lewy Body Dementia Association. (2013) Is It LBD or Something Else http://www.lbda.org/node/8

8.    University of California, San Francisco. (2012) Frontotemporal Dementia, Overview. http://memory.ucsf.edu/ftd/overview

9.    Lewy Body Dementia Association. (2012) Genetic Variant Increases Risk for Dementia in Lewy Body Diseases http://www.lbda.org/content/genetic-mutation-increases-risk-dementia-lewy-body-diseases

10.  Brauser D. (2011) Adult ADHD Linked to Increased Risk for Lewy Body Dementia. Medscape Today, Jan 27, 2011. http://www.medscape.com/viewarticle/736380  (requires free login)

11.  Lennox G (2006) Managing Dementia and Parkinson's Disease. A PowerPoint presentation. http://www.bjhm.co.uk/ppts/(21-09-2006)parkinsons2006/managing-dementia-and-parkinsons-disease.ppt

12.  Alzheimer's Association. (2013) 2013 Alzheimer's Disease Facts and Figures, Alzheimer's & Dementia, Volume 9, Issue 2. http://www.alz.org/downloads/facts_figures_2013.pdf

13.  Aarsland D, et al. (2005) A systematic review of prevalence studies of dementia in Parkinson's disease. Mov Disord. 2005 Oct;20(10):1255-63. http://www.ncbi.nlm.nih.gov/pubmed/16041803

14.   Susman E. (2013) Mental Deficits Show Up Early in Parkinson's.17th Annual International Congress on Parkinson's Disease and Movement Disorders. MedPage Today, June 20, 2013. http://www.medpagetoday.com/MeetingCoverage/MDS/40000

15.   Meireles J and Massano J (2012) Cognitive impairment and dementia in Parkinson's disease: clinical features, diagnosis, and management. Front. Neur. 3:88. doi: 10.3389/fneur.2012.00088. A review of the literature about these subjects through 2011. http://www.frontiersin.org/Dementia/10.3389/fneur.2012.00088/full

16.   Aarsland D and Kurz MW (2010). The epidemiology of dementia associated with Parkinson disease. J. Neurol. Sci. 289, 18-22. doi: 10.1016/j.jns.2009.08.034. http://www.ncbi.nlm.nih.gov/pubmed/19733364

17.   Rana A, et al. (2012) Prevalence and relation of dementia to various factors in Parkinson's disease. Psychiatry and Clinical Neurosciences 2012; 66: 64-68. http://onlinelibrary.wiley.com/doi/10.1111/j.1440-1819.2011.02291.x/pdf

18.    Remedy Health Media (2011) John Hopkins Health Alerts: Six Signs of Cognitive Impairment in Parkinson's Disease Patients. Posted September 26, 2011. http://www.johnshopkinshealthalerts.com/alerts/memory/cognitive-impairment-Parkinsons_5902-1.html

19.    Parkinson's Disease Foundation. (2013) Predicting Dementia in Early Parkinson's Disease. PDF, Science News. Apr 19, 2013. http://www.pdf.org/en/science_news/release/pr_1366397267

20.    Postuma R, et. al. (2012) Rapid eye movement sleep behavior disorder and risk of dementia in Parkinson's disease: a prospective study. Movement Disorders, Volume 27, Issue 6, pages 720-726, May 2012. http://onlinelibrary.wiley.com/doi/10.1002/mds.24939/abstract

21.    J.S. Saczynski J S, et al. (2010) Depressive symptoms and risk of dementia. Neurology July 6, 2010 vol. 75 no. 1 35-41. http://www.neurology.org/content/75/1/35.abstract

22.    Science Newsline, Medicine (2010) Mayo Clinic Study Finds Apathy And Depression Predict Progression from Mild Cognitive Impairment. Science Newsline, from Geda Y E, Mayo Clinic News, July 12, 2010. http://www.sciencenewsline.com/articles/2010071212000043.html

23.    WebMD.(2013) Attention Deficit Hyperactivity Disorder: ADHD in Adults. Reviewed by Quinn P on January 30, 2013. http://www.webmd.com/add-adhd/guide/adhd-adults

24.     Walitza S, et. al. (2007) Association of Parkinson's disease with symptoms of attention deficit hyperactivity disorder in childhood. J Neural Transm Suppl. 2007;(72):311-5. http://www.ncbi.nlm.nih.gov/pubmed/17982908

25.    Susman E. (2013) Docs Ignore Constipation in Parkinson's. 17th Annual International Congress on Parkinson's Disease and Movement Disorders. MedPage Today, June 17, 2013. http://www.medpagetoday.com/MeetingCoverage/MDS/39901

26.    Alzheimer's Society. (2011) Urinary tract infection (UTI) and dementia. Fact Sheet 528. Reviewed 2011. http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=1777

27.    Aarsland D, et al. (2005) Neuroleptic sensitivity in Parkinson's disease and parkinsonian dementias. J Clin Psychiatry. 2005 May;66(5):633-7. http://www.ncbi.nlm.nih.gov/pubmed/15889951

28.    Pederson T. (1997) The Unique Sensitivity of the Elderly. ExtoxNet FAQs on Sensitive Populations. http://extoxnet.orst.edu/faqs/senspop/elder.htm

29.    Drugs.com (2013) Benzodiazepines. http://www.drugs.com/drug-class/benzodiazepines.html

30.    Billioti de GS (2012) Benzodiazepine use and risk of dementia: prospective population based study BMJ 2012;345:e6231, 9-27-2012. http://www.bmj.com/content/345/bmj.e6231

31.    Collingwood, J. (2007). Inhaled Anesthetics Bring Alzheimer's Risk. Psych Central. http://psychcentral.com/lib/inhaled-anesthetics-bring-alzheimers-risk/000898

32.    National Clinical Guideline Centre (UK). (2011) The Management of Hip Fracture in Adults [Internet]. London: Royal College of Physicians (UK); 2011. (NICE Clinical Guidelines, No. 124.) 8, Regional (spinal or epidural) versus general anaesthesia. Available from: http://www.ncbi.nlm.nih.gov/books/NBK83023/

33.    Barnett S, et. al. (2009) Frequently Asked Questions About Anesthetic Considerations for Elderly Patients. American Society of Anesthesiologists Committee on Geriatric Anesthesia. http://www.sagahq.org/images/FAQs.pdf or:

34.    Lewy Body Dementia Association. (2008) LBD Medical Alert Wallet Card. http://lbda.org/content/lbd-medical-alert-wallet-card

35.    LBDA.(2012)Emergency Room Treatment of Psychosis.  http://lbda.org/go/er

36.    Leroi I, et. al. (2011) Neuropsychiatric Symptoms in Parkinson's Disease with Mild Cognitive Impairment and Dementia. Parkinson's Disease, Volume 2012 (2012), Article ID 308097, 10 pages.doi:10.1155/2012/308097. http://www.hindawi.com/journals/pd/2012/308097/ref/

37.    Munat F (2012) Be Brave. Unpublished book. http://florriemunat.com/contact_florrie_munat

38.    Goetz CG et al. (2006). The malignant course of "benign" hallucinations in Parkinson's Disease. Archives of Neurology 63:713-716. http://www.ncbi.nlm.nih.gov/pubmed/16682540

39.    eHealthMe (2012) Could Parkinson's disease cause delusion http://www.ehealthme.com/cs/parkinson's+disease/delusion

40.    Phelps R and Leblanc G (2012) While I Still Can. Xlibris Corporation. http://whileistillcan.net/

41.    LBDA (2010) Caregiver Burden in Lewy Body Dementia. http://lbda.org/go/caregiverburden

42.    Manohor A and Galvin J(2011) Brain imaging for Lewy Body Dementia. Lewy Body Dementia Association, 3/16/2011. http://www.lbda.org/node/543

43.    Alzheimer's Weekly. (2013) Is It Lewy Body Dementia or Alzheimer's? Datscan Can Tell. Alzheimer's Weekly, March 24, 2013. http://www.alzheimersweekly.com/2013/03/is-it-lewy-body-dementia-or-alzheimers.html

44.    Goldstein D. (2012) Cardiac Sympathetic Neuroimaging in Dementia with Lewy Bodies. J Neuroimaging. 2012 April; 22(2): 109-110. doi:  10.1111/j.1552-6569.2010.00526.x http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3030932/

45.    Vertesi A, et al. (2001) Standardized Mini-Mental State Examination. Use and interpretation. Canadian Family Physician, VOL 47: OCTOBER 2001 http://www.cfp.ca/content/47/10/2018.full.pdf

46.    Palmqvist S. et al. (2009) Practical suggestions on how to differentiate dementia with Lewy bodies from Alzheimer's disease with common cognitive tests. International Journal of Geriatric Psychiatry 2009; 24: 1405-1412. http://www.ncbi.nlm.nih.gov/pubmed/19347836

47.    Carolan Doerflinger D (2012) Mental Status Assessment in Older Adults: Montreal Cognitive Assessment: MoCA Version 7.1 (Original Version) College of Nursing. http://consultgerirn.org/uploads/File/trythis/try_this_3_2.pdf From a 2012 Series provided by the Hartford Institute of Geriatric Nursing, NYU.

48.    Changing Minds.org (2002-2012) The Kübler-Ross Grief Cycle. Disciplines, Change Management. http://changingminds.org/disciplines/change_management/kubler_ross/kubler_ross.htm

49.    Jennings J. (2012) Living with Lewy Body Dementia. One Caregiver's Personal In-depth Experience. (2012) WestBow Press. http://www.ourlewybodydementiaadventure.com/

50.    Meyyappan R. (2013) LBD and Social Security Disability Benefits. The Lewy Body Rollercoaster, June 8, 2013 blog. http://lewybodydementia.blogspot.com/2013/06/lbd-and-social-security-disability.html

51.    Jong N (2013) Activities of Daily Living (ADLs) SeniorHomes.com. http://www.seniorhomes.com/p/activities-of-daily-living/

52.    Wikipedia. (2013) Activities of Daily Living. ( 2013) Wikipedia, Therapy category. http://en.wikipedia.org/wiki/Activities_of_daily_living

53.    Medicaid.gov.(2013) Spousal Impoverishment. http://medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Eligibility/Spousal-Impoverishment-Page.html

54.    U.S. Department of Veterans Affairs. (2013) Guide to Long Term Care. Geriatrics and Extended Care. http://www.va.gov/GERIATRICS/Guide/LongTermCare/index.asp

55.   Memory People Facebook Page. A closed group for dementia victims, their caregivers and advocates

56.    Olpin M. (2010) The World is NOT a Stressful Place, Eloquent Books, 2010. Chapter 13. http://faculty.weber.edu/molpin/healthclasses/1110/bookchapters/musicchapter.htm

57.    Ramig L, et al. (2009) The Science and Practice of "Speaking LOUD" and "Moving BIG."  2009, APDA, Midwest Chapter. http://www.apdamidwest.org/APDA_Midwest/Speaking_LOUD.html

58.    Lourinda I, et al. (2013) Mediterranean Diet, Cognitive Function, and Dementia: A Systematic Review. http://www.ncbi.nlm.nih.gov/pubmed/23680940

59.    Cassels C (2013) Novel Exercise Program May Trump Meds for Dementia. Medscape Today, Mar 28, 2013. http://www.medscape.com/viewarticle/781607

60.    Ryan (2012) Four Scientific Findings that point to the importance of Brain Fitness for the Aging Population brain. 5/29/2012. http://www.marblesthebrainstore.com/files/Brain_Fitness_for_the_Aging.pdf

61.    Aubrey A. (2010) Mental Stimulation Postpones, Then Speeds Dementia. NPR News. September 4, 2010. http://www.npr.org/templates/story/story.php?storyId=129628082

62.    Jennings J. (2012) Living with Lewy Body Dementia. One Caregiver's Personal In-depth Experience. (2012) WestBow Press. http://www.ourlewybodydementiaadventure.com/

63.    Levine B. (2011) Warding Off Dementia. Baseline of Health Foundation Health Blog. 6/21/2011. http://www.jonbarron.org/article/warding-dementia

64.    Ramig L, et al. (2009) The Science and Practice of "Speaking LOUD" and "Moving BIG."  2009, APDA, Midwest Chapter. http://www.apdamidwest.org/APDA_Midwest/Speaking_LOUD.html

65.    JeanneG (2012) Fore! LBDA forum, LBD Clinical Issues, Treatment Options. June 9, 2012. http://community.lbda.org/forum/viewtopic.php?f=4&t=3483

66.    Schneider C. (2006) Don't Bury Me…It Ain't Over Yet. Author House. http://www.lbdtools.com/shop_books.html

67.    Jennings J (2012) Living with Lewy Body Dementia. One Caregiver's Personal In-depth Experience. (2012) WestBow Press. http://www.ourlewybodydementiaadventure.com/

68.    Silver H. (2009) "Food Modification verses Oral Liquid Nutrition Supplementation." The Economic, Medical/Scientific and Regulatory Aspects of Clinical Nutrition Practice: What Impacts What? 2009.Vol 12, pp 79-93. Web. 5 Mar. 2013. http://www.nestlenutrition-institute.org/resources/library/Free/workshop/BookNNIW12/Documents/NNW012079.pdf

69.    Jones P. (2008) Sleeping Aids for Seniors and Seniors With Dementia: Melatonin and Zolpidem.  Beth Israel Deaconess Medical Center. July, 2008. http://www.bidmc.org/YourHealth/Health-Research-Journals.aspx?ChunkID=330428

70.    Tsuang D, et al. (2010) Association between lifetime cigarette smoking and Lewy body accumulation. Brain Pathol. 2010 March; 20(2): 412-18. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2864364/

71.    Tubeza P (2013) FDA warns on dangers of e-cigarettes. Philippine Daily Inquirer, June 27, 2013. http://newsinfo.inquirer.net/434233/fda-warns-on-dangers-of-e-cigarettes

72.    Boston University Medical Center (2010) Moderate drinking, especially wine, associated with better cognitive function. ScienceDaily, 08/2010. http://www.sciencedaily.com/releases/2010/08/100818085651.htm

73.    Dartmouth College, Academic Skills Center. (2006) Alcohol and Sleep. Academic Skills Center, Dartmouth College 2001 BASICS - A Harm Reduction Approach. Oregon State University http://studenthealth.oregonstate.edu/sites/default/files/docs/alcohol_and_sleep.pdf

74.    Jaffee S. (2013) Therapy Plateau No Longer Ends. The New Old Age. Caring and Coping. http://newoldage.blogs.nytimes.com/2013/02/04/therapy-plateau-no-longer-ends-coverage/?hp

75.    Snyder, Pat. (2012) Treasures in the Darkness. CreateSpace Independent Publishing. http://lbd-caregiver.blogspot.com/

76.    University of California - Davis (2009) Brain Hub That Links Music, Memory And Emotion Discovered. ScienceDaily, February 24, 2009. http://www.sciencedaily.com/releases/2009/02/090223221230.htm

77.    Omar R, et al. (2011) The structural neuroanatomy of music emotion recognition: Evidence from frontotemporal lobar degeneration. NCBI.Neuroimage. 2011 June 1; 56(3): 1814-1821. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3092986/

78.    Snyder, Pat. (2012) Treasures in the Darkness. CreateSpace Independent Publishing. http://lbd-caregiver.blogspot.com/

79.    Bucznski R. (2012) Does Spirituality Belong in Therapy. National Institute for the Clinical Application of Behavioral Medicine. July 25, 2012. http://www.nicabm.com/nicabmblog/spirituality-in-therapy

80.    Fung J, et. al. (2012) A systematic review of the use of aromatherapy in treatment of behavioral problems in dementia. Geriatrics & Geriatr Gerontol Int 2012; 12: 372-382. http://onlinelibrary.wiley.com/doi/10.1111/j.1447-0594.2012.00849.x/abstract

81.    Lanza S. (2007) Aromatherapy in Dementia Care. The Dementia Caregiver's Toolbox, Parts 1, 2 and 3. November 18, 20 and 23, 2007 http://nurturingnuggets.typepad.com/the_nurturing_nuggets_blo/2007/11/aromatherapy-in.html

82.    Baldauf M P. (2011, Dec 27) "In Memory Of My Father, Richard Baldauf." Every Woman Blog. Posted on http://everywomanblog.com/2011/12/

83.    British Acupuncture Council (2013) Dementia. Back to Research Fact Sheet. March 28, 2013 http://www.acupuncture.org.uk/a-to-z-of-conditions/a-to-z-of-conditions/3202-dementia.html

84.    Yang M-H, et al. (2007) The efficacy of acupressure for decreasing agitated behavior in dementia: a pilot study. J Clin Nurs. 2007 Feb;16(2):308-15. http://www.ncbi.nlm.nih.gov/pubmed/17239066

85.    Viggo H N,et al. (2006) Massage and touch for dementia. Cochrane Database Syst Rev. 2006 Oct 18;(4):CD004989. http://www.ncbi.nlm.nih.gov/pubmed/17054228

86.    Snyder, Pat. (2012) Treasures in the Darkness. CreateSpace Independent Publishing. Blog: http://lbd-caregiver.blogspot.com/ Book: http://www.lbdtools.com/shop_books.html

87.    Scarff S and Zultner A. (2012) Dementia. The Journey Ahead. Langdon Street Press, MN. http://www.dementiathejourneyahead.com/

88.    Walker, Joy, (2011) Three Years and Thirteen Dumpsters: Cleaning House After Dementia. CreateSpace Independent Publishing Blog:  http://cleaninghousebook.blogspot.comBook:http://www.lbdtools.com/shop_books.html

89.    Schneider C. (2006) Don't Bury Me…It Ain't Over Yet. Author House. http://www.lbdtools.com/shop_books.html

90.    Wesolowski, K. (2010) When Should People With Dementia Stop Driving? Neurology Now: May/June 2010 - Volume 6 - Issue 3 - p 11 http://patients.aan.com/resources/neurologynow/?event=home.showArticle&id=ovid.com:/bib/ovftdb/01222928-201006030-00008

91.    CaregiverStress.com. (2010) The 50/50 Rule: Solving Family Conflict. http://www.caregiverstress.com/family-communication/solving-family-conflict/sharing-care-plans/

92.    Agingcare.com. Obsessive Compulsive Disorder (OCD) in Elders. National Institutes of Health. http://www.agingcare.com/Articles/obsessive-compulsive-disorder-in-elderly-parents-138686.htm

93.    Parkinson's Disease Foundation. (2010) The Ups and Downs of Dopamine: Impulse Control and Parkinson's. An Interview with Dr. Daniel Weintraub. News and Review. http://www.pdf.org/pdf/NL_Fall_10.pdf

94.    Snyder, Pat. (2012) Treasures in the Darkness, Create Space Independent Publishing Book http://www.lbdtools.com/shop_books.html

95.    Whitworth, H. (2013) Hospice is for Life not Death. The Lewy Body Rollercoaster. June 15, 2013. http://lewybodydementia.blogspot.com/2013/06/hospice-is-for-life-not-death.html

96. [1] Cane, M. (2015) Elderly at risk when antipsychotic drugs used to treat dementia. The Columbus Dispatch  •  Monday November 2, 2015. http://www.dispatch.com/content/stories/local/2015/11/02/elderly-at-risk-in-using-antipsychotic-medications.html

97. [1] H. C. Kales, et. al. (2015) Assessment and management of behavioral and psychological symptoms of dementia. BMJ, 2015; 350 (mar02 7): h369 DOI: 10.1136/bmj.h369. kales_bmj_2015.pdf

98. [1]Crisis Prevention Institute. (2016) Use This Life Story Questionnaire for More Person-Centered Dementia Care. https://www.crisisprevention.com/CPI/media/Media/Specialties/dcs/Life-Story-Questionnaire.pdf

99. Whitworth H (2007) Barbara and Bill Hutchinson, Travelers Extraordinaire. First published in the LBDA Lewy Body Digest, Spring 2007.